News/stories

When we think about youth cancer, the focus is often on the number of young people diagnosed (around 1,000 a year) and their medical treatment. It is incredibly important that young cancer patients get specialist, age-appropriate care.

I’ve been a Board Director at Canteen for six years. In that time I’ve provided oversight and governance for an organisation that has a rich tradition of listening to and empowering its young voices. I am honored to be one of them.

COVID-19 has seen many of us miss out on spending time with our loved ones. Maybe the pandemic has meant not seeing our parents for three months, three years or – in the worst situations – ever again. And as a result, a lot of us are experiencing grief.

In the eight and a half years I’ve worked at Canteen, I’ve been continuously amazed at the incredible generosity our community shows us each and every day.

For most of my professional life I’ve been caring for children, adolescents and young adults. I’ve helped them with their nutrition, overall health and wellbeing, and now, at Canteen, with evaluating and understanding what exceptional cancer care and support looks like.

Canteen has grown its scope of work over the past 36 years and we can be proud of so much, not least the way we have been able to successfully advocate and lobby for better outcomes for young people impacted by cancer.

Each year when NAIDOC Week rolls around (4-11 July this year) I start to feel more and more a shift in the way we mark and celebrate this week. This year it’s special to me as we move a bit further along in our Reflect Reconciliation Action Plan at Canteen.

I’ve been working hard for the past 18 months on an incredible project made possible by Metricon – who are empowering Canteen to reach out and improve the community’s understanding of how chronic illness can impact families.

Since beginning my career in paediatric and adolescent oncology, it’s been my goal to amplify the voices of young cancer patients. I’ve been particularly focused on fertility, which always strikes a chord with me when Mother’s Day rolls around each year.

A lot of the work our research and evaluation team do is based on better understanding what it’s like to be a young person with cancer, including the sometimes elusive idea of friendship and connection. How do we measure that?